A Message from Pilar Beedle

 
My daughter, Hope Beedle (16 year old, Junior at Farragut High School)
and her small group at church are helping with a fundraiser (silent
auction) for a sweet little girl (2 years old), Claire Cox who is a
pediatric stroke survivor. We are having the fundraiser this Friday,
September 23, 2011 at 7:00pm at Two Rivers Church (275 Harrison Lane
-Dixie Lee Junction), all proceeds will go towards Claire's therapy.
We need some help with advertising the fundraiser Is there anyway you
could help us advertise this wonderful event? Moe's Southwest Grill
will be donating the dinner for the evening, dinner ticket will be $10
and children 12 and under eat free.

We have a lot of great donations to auction off, here is a list of
some of the donors: The Adorable Child, Ross the Boss, Rick Terry
Jewelry Designs, Cumberland County Playhouse, Scoop'd, Wild Wings
Cafe, Willow Creek Golf Course, Lakeside Tavern, 1st Automotive,
Double Tree by Hilton in Atlanta, GA, Firestone Complete Auto,
Ripley's Aquarium, Massage Envy, Runner's Market, Dream Katcher Lodge,
The Chop House, Dixie Stampede, Panera Bread, Side Splitters,
Dollywood, Gym Bugs, Little Gym, Salon Visage, and the list is still
growing. We also have autographed sports and Hollywood memorabilia,
set tour pass to the Bold and the Beautiful, Sculptures, Artwork, etc.

I have included Claire's amazing story. You can read more at
sendclaire.com, or on Facebook - Send Claire

Any help would be greatly appreciated!

Thank you -Pilar Beedle
(303)332-2173 -cell

This is Claire Cox's story:
Richard and Michelle Cox welcomed Claire Renee Cox into the world on
April 20, 2009. Michelle pregnancy and Claire’s birth were perfect in
every way. At four months old, Michelle & Richard noticed that Claire
was starting to grab things with her left hand only. Michelle who is a
pediatric occupational therapist, started to get worried…really
worried. Michelle had seen this before in her patients diagnosed with
Cerebral Palsy. During a pediatrician visit, their fears were
dismissed as “first time parent-fears”.  At five months, Claire was
still not using her hand and Michelle asked a favor of a local
neurologist to perform an MRI.

On November 10, 2009, at six months old, Claire underwent an MRI.  The
doctors were positive this was not going to reveal anything major
because "Claire is so alert."  But when the results came back, her
parent’s worst fears were confirmed. Claire had a massive Left
Hemisphere Middle Cerebral Artery Occlusion. This is commonly referred
to as an Ischemic Stroke....timed back to occurring approximately week
34 in utero.  It was not small; in fact, it wiped out 3/4 of her left
brain which controls the right side of her body. Three specialists
have all looked at Claire and said, "she should not have made it
through this alive" to "this is the worst MRI I have seen in a living
patient" and "we are looking at a miracle."  A hematologist determined
the cause was underlying blood clotting disorders that Richard and
Michelle both had but did not know....in fact 1 in 20 people have one.

Michelle did what any mother would do....PANICKED AND CRIED...but got
it together, because after all, she was a therapist and knew what
needed to be done to help her child. In fact, Michelle wrote a thesis
in school on stroke rehab. Was this fate?

Claire attends physical therapy twice a week, occupational therapy
twice a week, developmental therapy once a week and speech therapy,
along with numerous orthotic, neurology, hematology and physiatist
appointments. Insurance pays for 60 therapy visits a year, and they
are well over that limit after March of each year.
As Claire has grown, her limitations have become more apparent. Her
right hand is non- functioning. She could not sit up until she was 10
months old; she crawled at 11 months, pulled to stand at 19 months.
As Claire grew her right leg began to show signs of delay and her
balance was just not there. In February 2010, Claire's physical
therapist was uncertain that she would walk without assistance. She is
also delayed in expressive language, since that is based in the left
hemisphere.

At 16 months, Claire was accepted to the world renowned University of
Alabama"s ACQUIREc program.  This program casts her left arm so that
the brain is trained and rewired to use and recognize the right arm.
The program is 21 days long and six intense hours of therapy a day.
The private pay cost is $15,000 per session plus living expenses. She
will need this program a minimum of five times before her 5th birthday
because of the degree of brain damage caused by her stroke. The
younger she is the more the brain can compensate. Michelle and Richard
immediately began local fundraising through raffles, garage sales,
bake sales and public donations.

Claire’s first ACQUIREc session was at 16 months old: Claire completed
four hours of intense therapy, had a two hour nap break and then two
more hours. Claire gained shoulder and elbow function, but no finger
movement.

On March 17, 2011 Richard and I flew Claire to Orange County, CA to
meet with a stroke specialist. Claire was evaluated and sent to
Tijuana, Mexico to receive life changing umbilical cord stem cell
treatment.  Our little girl, that was predicted not to walk, took her
first steps 2 1/2 weeks later.  The first procedure was $18,000 and we
have a follow up procedure scheduled in July 2011.

Claire completed her 2nd ACQUIREc session at 25 months old: This year
no nap break, just two therapists and six intense hours straight
therapy. Claire gained opening her fingers to grossly grasp. Her 3rd
ACQUIREc session is scheduled for May 2012.

At this point, fundraising is our only way to continue this program
and stem cell treatment that has given our daughter skills that no
other traditional therapy has been able to give her. We have exhausted
all of our savings, and have taken second jobs to afford weekly
therapy.

We are asking that everybody take a moment to think about things that
involve both hands that you do every day. From tying your shoe, to
climbing, to turning pages in a book, to cutting with scissors....just
think about life with one hand.

Groups: